Saturday, May 29, 2021

VOLUNTEERING IN PALLIATIVE CARE : Dos and Don'ts

 

 Prepared by Sr. Hanife MacGamwell

 

 

VOLUNTEERING

DO’s

 

·       KEEP patient and family information confidential

·       RESPECT person’s right to (physical and emotional) privacy

·       ALWAYS ask if it is the right time to visit or right time to call

·       IF you have an appointment for a visit or a call and you cannot be on time or unable to make it at all let them know

·       ALLOW the patient and/or family to let you know how much they already know regarding the diagnosis and prognosis  etcand how much they want to know. Arrange for a nurse or doctor to discuss further

·       Encourage person to initiate subjects they wish to discuss

·       Listen without judging.

·       Have a cheerful approach

·        Be honest and sincere.

·        Be available and reliable and consistent

·       Build trust

·        BEWARE of your body language and the tone of your voice

·        Keep your feelings to yourself never allow alarm, anger, shock, disgust show in your face and/or in your voice

·       Encourage independence as limitations permit

·       Reach out

·       Be respectful and non-judgmental

·       Be genuine, open, honest, and sensitive

·        Be knowledgeable of resources etc, if you do not know something say you I do not know but I will  find out and get back to you” DO get back the patient or family

·        Provide encouragement and support

·        Expect repetition and go with it.

·        Be flexible and go with changing needs.

·        Be informed - but remember you are not a teacher

·       Promise only what you can deliver.

·        KEEP your promise

·       Listen with your whole self

·       Use open-ended questions

·        Be OKAY with SILENCE.

·        Summarize what was said, what you need to follow up on

·       Know and admit your strengths and weaknesses

·        Remember you are volunteer, a support do not discuss medications, medical diagnosis etc. listen to the patient and the family, take notes, share with the team and get back to them.

·       During a visit make sure your phone is in silent mode

·       KEEP Objective and subjective NOTES OF EACH

·       INTERACTION WITH PATIENTS AND FAMILIES

·       COMMUNICATE WITH TEAM MEMBERS

DONT’s

·       Make a call or go for a visit if you are NOT in a good mood

·       Use “you should”

·       Give advice

·       Over praise.

·       Intrude

·       Probe

·       Appear busy, distracted

·       Follow your own agenda

·       Talk down to person

·       Stay too long or talk too long

·       Monopolize the conversation

·       Gossip

·       Patronize eg: “that’s all right now”

·       Rely on the use of clich├ęs-

·       Change the subject

·       Ignore the problems raised by the person

·       Use closed, irrelevant or inappropriate or “WHY” questions

·       Use inappropriate warmth or sympathy

·       Give your personal number - if possible hide your number on cell phone or use landline- or any other volunteer’s personal number

·       Make promises you cannot keep

·       Take pictures without their permission

Saturday, May 22, 2021

Mathrubhumi Daily carrying news item on Palliative Care during Covid pandemic time by DNipCare on 23.05.2021

 


Mathrubhumi Daily dated 23.05.2021 carried the news item on the Palliative Care mission work being carried out by DNipCare for the long term bedridden patients during the Covid pandemic time in Delhi.  


DNipCare held an orientation session on Palliative Care for the registered Students of Delhi Pharmaceutical Sciences & Research University as Volunteers for rendering Palliative Care on 22nd May 2021

DNipCare held an orientation session on Palliative Care for the registered Students of Delhi Pharmaceutical Sciences & Research University  as Volunteers for rendering Palliative Care on 22nd May 2021.

Ms. Jasela Majeed, Associate Professor, DPSR&U presided over the programme coordinated by Miss Priya Rathode, Student Volunteer.

Prof. P.K Jaggi, ex-Drugs Licensing Authority, Delhi was the Chief Speaker on the occasion.  The other Speakers were 

1. Sr. Hanife MacGamwell, Palliative Care Nurse Specialist, 

2. Miss Tuba Naqvi, PhD Scholar (Palliative Care), Jamia Millia Islamia University,

3. Miss Seema Prasad, Volunteer Coordinator, DNipCare

4.  Shri Abdul Kareem, Economic Advisor, Ministry of Information & Broadcasting and Volunteer, DNipCare

5.  Shri Manish Taneja, IT Consultant  and Volunteer, DNipCare

6.  Dr. Sania Sharma, Educational Consultant, UK, and Volunteer DNipCare

7.  Miss Neha Pathak, MSW Student,  Department of Social Work, Delhi University and 

8.  KV Hamza, General Secretary, DNipCare.






















 



 


DNipCare in association with Trained Nurses Association of India (TNAI), Telengana, Hyderabad held "Palliative Care : An Update", Palliative Care Sensitization Programme for the Nursing Students from 11.00 AM to 1.30 PM on Saturday, 22nd May 2021

 

On the occasion of Nurses Day, DNipCare in association with Trained Nurses Association of India (TNAI), Telengana, Hyderabad,

held "Palliative Care:An Update", Palliative Care Sensitization Programme 

as part of Virtual National Campaign Programme on Palliative Care for the Nursing Students from 11.00 AM to 1.30 PM on Saturday, 22nd May 2021.

Programme Details:

Welcome : Mrs. Rajeshwari Muppidi, President, TNAI, Telengana, Dean, Care Group of Colleges.
 

Unfolding of Nurses Day Theme:Prof(Dr) A T Kora

Inauguration: Dr. Ramu K, Dean, Faculty of Nursing, Rajiv Gandhi University of Health Sciences, Bengaluru, & Principal RR College of Nursing, Bengaluru.  

Facilitator: Mr. K.V. Hamza, Gen. Secretary, DNipCare
 

Speakers:
 

1. Dr.Saveena G Raheja, Incharge, Palliative Pain Clinic, VMMC & Safdarjung Hospital, New Delhi.

2. Mrs. Alice Stella Vergina, National Faculty, IAPC, ELNEC Master Facilitator.

3. Sr. Hanife MacGamwell, Palliative Care Nurse Specialist, ELNEC USA Honorary Head and Instructor for India.

Questions/Answers:
 

Vote of Thanks:Sr.Bandhavi, Principal,JMJ College of Nursing,SNA Advisor,Telangana.

Overall Coordination : Mr. Suresh Thaliyaril, Secretary, DNipCare.

 




























 

Saturday, May 15, 2021

In association with DNipCare, Delhi Pharmaceutical Sciences & Research University held a Palliative Care Sensitization for Students on 15th May 2021

In association with DNipCare, Delhi Pharmaceutical Sciences & Research University held a Palliative Care Sensitization Programme "Creating a Vision of Hope through Palliative Care - Role of Students" for Students on 15th May 2021.  The programme was coordinated by Dr. Jaseela Majeed, HoD in the University.