Thursday, January 30, 2014

Talk on Palliative Care during Sneha Sangamam of Delhi Islahi Centre

Delhi Islahi Centre provided an opportunity to give a talk on Palliative Care during their Sneha Sangamam on 29th January 2014 in Emeral Hotel, Barakhamba Road, New Delhi.

Dr. Hussain Madavoor inaugurated the program and delivered a detailed speech on the theme of Religion, Humanity and Renaissance especially in the current Indian context.  Mr. Kuttappan, President, SNDP felicitated the program and spoke on the various aspects of religious harmony.  Coming to the Palliative Care, KV Hamza, General Secretary of DNipCare introduced the Community based Palliative Home Care program being rendered by the volunteers of DNipCare to the long term, bedridden, terminally ill patients including Cancer, Renal failure patients and Geriatrics.  The attentive august audience comprising mainly the student community from JNU, Jamia, Delhi & Amity Universities were very much receptive to the subject and assured their participation in the mission activities of DNipCare for the underprivileged patients in Delhi.

Sunday, January 26, 2014

Republic Day Celebrations With Cancer Patients

Press Release

Propagation of Palliative Care to the masses is an integral part of the mission and vision of DNipCare.  Participating in the Republic Day celebrations of Okhla residents organized by the Indian Union Muslim League, the volunteers of DNipCare passed on the message of community based Palliative Care required for long term bedridden terminally ill patients including Cancer patients and Geriatrics to the audience.   The Deputy Commissioner of Police of the area, during his speech, has also promised the wholehearted support of the police as they are already engaged in so many other welfare activities for the children and adults of Okhla.  It is expected that the sensitized local population will come forward and cater to the suffering patients in the Palliative field.      

As usual for the festivals and festivities, celebration of Republic Day by DNipCare volunteers in the afternoon was with the Cancer Patients in Delhi State Cancer Institute.  However, the icing on the cake was the news about announcement of Padmashree to Dr. R.K. Grover, the Director and CEO of Delhi State Cancer Institute.  The DNipCare volunteers, after celebration with Cancer Patients and distribution of blankets sponsored by Delhi Islahi Centre, to all the patients in Cancer Institute and attached Sir Soba Singh Dharamshala, felicitated the honouring of Dr. Grover, the visionary director of the institute.     Volunteers belonging to different walks of life participated in the event.  

With warm regards,

kv hamza,
General Secretary, DNipCare

Thursday, January 16, 2014

An inspiring news story of a Muscular Dystrophy patient

Wednesday, 15 January 2014
Jayaraj was an 'Odd', now an 'Even'

Jayraj was an 'Odd', now an 'Even'

Determination of Jayraj Sirmukaddam made down, the heads of Himalayan peaks.

Jayraj passed the Diploma examination in Information Technology from the Government Polytechnic at Nagpur with 70% aggregate and thereafter in May 2013, his B.E. (Information Technology) with 72% from G H Rasoni College of Engineering, an Autonomous Institute affiliated to Nagpur University.

What makes his achievement outstanding?

Perhaps Jayraj is the only Duchene Muscular Dystrophy patient (DMD) - a genetic, hereditary muscle disease which causes progressive muscle weakness - to have completed his education till this level. Wheelchair-bound since he was 11 years old, Jayraj is totally dependent on his parents - father, Mukund and mother, Shaila and brother – as his muscles are too weak for him to walk on his own.

However, through sheer will power, he is able to write. It is difficult for him to sit for any length of time. His disability has never deterred him for nothing seems impossible to Jayraj. He has performed adventurous activities like river rafting and para sailing.

He has gone on desert safaris. Whatelse make him now an 'even'; he visited all the dhams (shrine) considered sacred to Hinduism, and all these dhams are on top of Himalayan Peaks.

Saturday, January 11, 2014

Palliative Care Monthly Review Meeting on 11th January 2014

Palliative Care Monthly Review Meeting 
on 11th January 2014 
in Kerala Club, M 67, Connaught Place, New Delhi

Saturday, January 4, 2014

Our Condolence.....

Vipin Kumar of Ramgarhi in Bulandshahar, Uttar Pradesh, fondly called as Vipin is a name familiar among all the volunteers of our Palliative Care under DNipCare as many of them met him, interacted, befriended and cared this merely 20 years old boy who was suffering from Ewing’s Sarcoma.  The first bed in the ground floor hall dormitory of Sir Soba Singh Dharamshala of Delhi State Cancer Institute was always had Mr. Vipin as its occupant with a wryly smile on his face to the visitors.      Even while undergoing the perils of Chemotherapy and Radio therapy he loved to read anything and everything to forget his worries though he could not complete his schooling beyond 11th standard due to spread of the disease.  Student volunteers were therefore very much fond of him and used to give him books and reading materials.  

Hip amputation from AIIMS in July 2013 to contain the tentacles of the Cancer Crab, which made a big lump on his left thigh, was a turning point in his life as management of the large amputation wound was in the hands of DNipCare nursing volunteers as Vipin was discharged from the hospital on the very next week of amputation.  The experience of a patient instructing the carers used to be not only a novel experience to all those well qualified and experienced nurses from premier medical institutes, but also the beginning of a friendship bond for them with this boy.  Suresh Thaliyaril, Abdul Latheef, Lijin Raj, Shoukath, Justin G, Binnu, Fameer, Shyju CV, Ajith Mohan, Jinesh, Jafer, Linesh, Shabeer Ali, Shilpa Babu, Caroline Arthur etc., to name a few were always there to attend to him when he was in Dharamshala of AIIMS, Hospice Centre of CanKids and Dharamshala of DSCI.  The nursing staff of CanSupport was also there to provide him nursing care from their outlet in Dilshad Garden.  Even after losing one leg, Vipin struggled and fought with the disease to the maximum, but finally succumbed to the destiny and left us all at 12.30 AM on 1st January 2014 when the entire world was celebrating the arrival of New Year.   

Let us pray for the departed soul to rest in peace.  Let us also pray for providing adequate strength to his bereaved family including his parents to cope up with the loss of their young boy.   

With regards,
kv hamza,
General Secretary, DNipCare